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Lift for the Cure: Ulman Cancer Fund event in Maryland

On Sunday September 16, 2007, The Colosseum Gym will be hosting the 1st Annual Lift for the Cure: Powerlifting and Bench Press Competition. All proceeds to help benefit the Ulman Cancer Fund for Young Adults. This will be an OPEN meet limited to 60 lifters. All weight classes will be honored, including a separate Law Enforcement Division (Top Cop Award). This will be a unsanctioned RAW meet (belts and wraps only). USAPL rules apply.

Guest Judge and exhibition lift by 7-time USPF National Champion and 6-time IPF World Champion, "Captain Kirk" Karwoski.

The $25 application fee/donation includes a unique event t-shirt, food and refreshments and the opportunity to help a great cause. Event categories include Squat/Bench/Deadlift OR Bench only. Weigh in time is 8 am - 9am. Lifting will start at 10 am. Limited to 60 lifters.

Spectators are welcome! The $5 spectator donation to The Ulman Cancer Fund for Young Adults includes food and refreshments. Children under 6 are free. Shirt sales and vendors will be on the scene.

The event will be held at The Colosseum Gym located at 9195F Red Branch Road, Columbia, Maryland.

More on the Ulman Fund and how it came about.

Continue reading Lift for the Cure: Ulman Cancer Fund event in Maryland

Rise Above It: RAI helps young adults battle cancer

Rise Above It (RAI) is a non-profit organization that helps young adults battling cancer. The strength in spirit of its founder, Colin O'Donoghue, guides RAI in its efforts. As a friend, teacher and coach, Colin deeply enriched the lives of others.

RAI continues this practice with the same enthusiasm and vigor he brought to every aspect of his life. Colin always believed that enjoying life and embracing a positive attitude were essential components of happiness. Using this principle as inspiration, RAI devises fun and positive events that raise money to accomplish its primary objective: to provide meaningful support to young cancer patients.

This is achieved by hosting fund-raising events designed to provide eligible recipients with additional resources. Using the proceeds from these events, RAI board members solicit cases to provide grants and personal consultation to individuals and families with immediate needs in their fight against cancer. Through financial assistance and personal attention, RAI strives to instill a positive attitude within its recipients, thus allowing them to live each day with faith and a fighting spirit.

Crazy Sexy Cancer book and documentary

I was at the book store yesterday and picked up a cool book for my friend and fellow breast cancer survivor Deb, her birthday is this week.

The book is titled Crazy Sexy Cancer Tips, a practical (and funny) survival guide with insights of other young women with cancer. Sheryl Crow writes the forward for the book!

I learned that they have a website and also a documentary called Crazy Sexy Cancer, an uplifting documentary about a young woman looking for a cure and finding her life.

In 2003, 31-year-old actress/photographer Kris Carr was diagnosed with a rare and incurable cancer. Weeks later she began filming her story. Taking a seemingly tragic situation and turning it into a creative expression, Kris shares her inspirational story of survival with courage, strength, and lots of humor.

Helping teens with cancer feel normal ... for a while, at least

Though the prom is mostly a distant memory for me, I can recall with vivid detail the feeling that it was the crowning achievement of my life and though I've since had much more definitive moments, at that time it was everything. As someone who had a pretty typical upbringing, I can't imagine what it would be like going through that stage of teenage angst with cancer. My biggest problem was finding a dress, while others are wondering how they will get through the night after a round of chemo.

I find this story of a group of teens with cancer and their opportunity to attend the prom inspiring and simultaneuosly heartwarming and heartbreaking. Armed with wheelchairs and life-saving machines, they posed for pictures, danced and mingled with fellow cancer survivors, and for one night at least they had a chance at normalcy, a chance to worry about finding a dance partner and keeping their make-up fresh instead of worrying about the fight for their life.

The Good Bead company donates to the YSC

The Good Bead company wants you to show your support for the fight against breast cancer with their pink ribbon collection.

Here at The Good Bead we believe supporting the community never looked so good. We are focused on supporting worthy causes by custom creating high-quality, affordable products that engage consumers and raise awareness in the community.

The Good Beads new product Fondangles are quite possibly the most unique line of cell phone straps available. Their unique designs, high quality materials and optional o-ring make will attach to almost any cell phone. The Good Bead will be donating a percentage of sales from Fondangles to the Young Survival Coalition. Fondangles will be available beginning July 9th at Best Buys stores in New York City (Madison Avenue, Union Square, Noho, and 86th & Lexington); Riverside, CA (Tyler Street and Canyon Springs Parkway); Jacksonville, FL; Kennesaw, GA; Douglasville, GA; Atlanta, GA; and Peachtree, GA.


Nicole Norman Wetzel loses her fight with breast cancer

Nicole was a fellow member of an online group called Sisters In Survivorship. It is a Yahoo support group for women under 40 that have been diagnosed with breast cancer. I remember speaking to Nik on the phone a few times a few years ago when she needed some support and encouragement. I knew she wasn't doing that well lately and I found out today that she has passed away.

Her obituary reads as follows:

Nicole Norman Wetzel passed away on Wednesday, June 20, 2007 at her home in Mandeville, LA.

Beloved wife of Jason Steven Wetzel and devoted mother of Dominique Claire Wetzel, she is survived by her parents, Dale David and Elmire Begovich Norman; one brother, Kevin David Norman and many nieces, nephews and cousins. She was preceded in death by her grandparents: Dominick and Josephine Begovich, Dennis and Rose Norman.

Age 35 years, a native of Marrero, LA and a resident of Mandeville, LA for 14 years. Nicole was a 1990 graduate of Immaculata High School, she received a degree in Business from UNO before moving to Mandeville where she worked as a Notary and Paralegal.

The death of Christine Sansone

Christine Sansone was diagnosed with breast cancer in 2000 at the age of twenty-five. She passed away a few days ago after battling bone metastasis for eight years. She recently had leg surgery and never recovered. I met Christine a few times at the Young Survival Conference held by LBBC and the YSC.

Christine was featured in The Beautiful Eight -- An educational video for women living with metastatic disease.

She was recently quoted in the March/April issue of MAMM magazine.

"Living longer and stronger - Women with metastatic breast cancer are bringing new hope and energy to their cause." -- Christine Sansone.

Christine's story..

Continue reading The death of Christine Sansone

Obesity and young patients diagnosed with leukemia

Young patients that are diagnosed with a form of leukemia called acute lymphoblastic leukemia (ALL) are at an increased risk of relapse if they have a high body mass index at the time of diagnosis.

Dr. Anna M. Butturini, lead investigator of a study that reported the findings, said "Obesity is associated with lower probability of cure in pre-adolescents and teenagers with ALL. A current analysis suggests that the same is true for adults with the same disease".

Dr. Butturini thinks that there is a need for better understanding of why obese patients have an increased risk of relapse. If this is found out, then better therapies for these young patients could be potentially designed.

Test may catch ovarian cancer in early stages

Ovarian cancer is hard to detect and is usually found in the advanced stages. It is the most deadly of all gynecological cancers. Transvaginal sonography (TVS) screening has been associated with detecting ovarian cancer at earlier stages of the disease.

TVS is a procedure used to examine the vagina, uterus, fallopian tubes, ovaries, and bladder. An instrument is inserted into the vagina that causes sound waves to bounce off organs inside the pelvis. These sound waves create echoes that are sent to a computer, which creates a picture called a sonogram. The test is also known as a transvaginal ultrasound.

The researchers' findings appear in the May issue of Cancer. In the study, colleagues assessed the value of annual TVS screenings in over 25,000 women. Participants had to be at least 50 years of age with no cancer symptoms or at least 25 years of age with a family history of ovarian cancer.

Continue reading Test may catch ovarian cancer in early stages

Young Survival Coalition: Some stats on young women with breast cancer

I usually check the Young Survival Coalition message boards everyday. Even though I am five years out from my cancer diagnosis, this is a place I love to go to for support and also to help other young women who are newly diagnosed.

I hope that I can be helpful in some way, maybe by answering questions or just telling the girls that I did have a positive lymph node and I'm still here with no recurrence at this time. I know that when I was first diagnosed, one of the important things to me was finding someone with the same diagnosis that was years out from chemotherapy and doing fine.

There was a poll that was done by one of the board members. I found it to be interesting. The question put out to the women on the YSC message board was -- How old were you when diagnosed with breast cancer?

Continue reading Young Survival Coalition: Some stats on young women with breast cancer

Breast Pap Test to detect abnormal cells

Wouldn't it be great if we could find breast cancer long before something appears on a mammogram?

An FDA approved test called the Halo Breast Pap Test System might be able to do just that by collecting Nipple Aspirate Fluid (NAF). The test is designed to detect abnormal cells in the breast. The Halo system can identify benign disease as well as abnormal ductal cells that can be precursors to cancer.

Some research has suggested that ductal fluid excreted from the nipple can be used to identify a women's specific risk of breast cancer. A women with abnormal cells in the fluid has a four to five times greater risk of developing breast cancer.

Think about this:

The introduction of the HALO Breast Pap Test has been compared to the introduction of the Cervical Pap Test in the 1950s, which is widely credited with reducing cervical cancer death rates by more than 70 percent through the identification of abnormal cells in the cervix. Whether the same can be said for the breast pap test remains to be seen, but it is likely that the screen will be adopted by more OB-GYNs as oncologists push for ever earlier identification of cancer.

Topical testosterone cream does not increase libido

Sad news for the female cancer survivors out there with decreased libido. Topical testosterone creams do not seem to work. A decrease in libido is a common problem among female cancer survivors.

When is our Viagra going to come out?

Seriously though, its tough being in a position where chemotherapy wrecks havoc on our bodies and ruins our libido -- then we are told there is nothing we can do about it. I'm a breast cancer survivor with estrogen positive disease so it is not recommended that I use any supplemental estrogen.

Testosterone cream was tried out in a study, published in the Journal of the National Cancer Institute, that included 150 post-menopausal breast cancer survivors. Half received the testosterone cream and the other half a placebo. The study found that there was no statistical difference in libido between the testosterone cream and placebo groups.

However, all women in the study did show some increase in sexual desire. What that means is that just thinking it might work made some women more horny -- this is known as the placebo effect.

Survivor Spotlight: Spunky Katie

Katie is a member of the Young Survival Coalition. She agreed to do an interview about her breast cancer journey. She blogs here, when I just checked her blog she had a funny post to share about how her cleaning lady likes to party.

"i left an ativan on the bookcase last week.
she put it in the candy bowl."

How did you find out you had breast cancer?
In November 2006, I had an excisional biopsy to remove what I had been told was a fibroadenoma. A few days after the surgery I went back to the surgeon to have some stitches removed. At the time I was so convinced it was benign that I didn't think to be nervous about getting the results of the pathology report. When my surgeon told me it was cancer, I didn't get upset. I just really had no idea what "cancer" meant, as it was nothing I had ever thought about happening to me. I spent the rest of the day in shock - I didn't even cry. Incidentally, it was the same day as my nine-year anniversary with my husband. We ate a very expensive dinner in complete silence.

Continue reading Survivor Spotlight: Spunky Katie

Alese has sadly lost her fight with Hodgkins disease

I did a post about Alese back in March titled Survival Spotlight: Alese Coco is fighting 2 win. I read on her website today that she passed away on Monday May 7, 2007.

This is what I read on her website.

It is with shattered hearts we announce that Alese died Monday May 7th at 1:20 p.m.

Mentally and emotionally, Alese's attitude to the end remained Fight 2 Win. However, her body could no longer carry on the fight and she succumbed due to respiratory complications. She will be greatly missed and there is a collective ache and void left in the hearts of the many people who loved her and were encouraged by her.

What a beautiful young girl she will be forever.


Thought for the Day: I'm too young for this

There's this guy. His name is Matthew Zachary. He's a cancer survivor, a motivational speaker, a concert pianist, and the founder of a resource portal for young adults surviving cancer.

Steps for Living, Inc. -- also known as I'm too young for this -- was created by Zachary because he wants us all to know there are awesome cancer support services out there for adolescents and young adults. He means really awesome opportunities -- like spa retreats, online forums and blogs, social networking, camping excursions, fertility education, peer counseling, financial scholarships, and more.

You may be too young for cancer, but you are not alone, says Zachary whose mantra is Get Busy Living. And this is exactly what he is doing, despite challenges and setbacks in his own cancer recovery.

Think about this, an e-mail written by Zachary for those near and dear to his heart:

I am writing to share that I have suddenly gone deaf in my left ear. The condition is called Sudden Sensory Neural Hearing Loss.

After consulting with the country's best hearing experts as well as my oncologist, it has been determined that this is unequivocally a latent, long-term side effect of my post-operative cancer treatments from eleven years ago. Evidently, the excessive radiation dosages to the left hemisphere of my brain have caused irreparable neurological damage to my cochlea, which has ceased functioning.

There may be options (cochlear implants) but I will not know more for several weeks. As you can imagine, this is a devastating blow to my personal life and music career, especially since I remember fighting so hard to regain dexterity and muscle control in my left hand when it ceased functioning prior to my initial diagnosis in 1995.

That said, it has only reinvigorated me to stay the course and continue to advocate on behalf of the more than 500,000 young adults living with, through and beyond cancer each and every year. Now more than ever, I stress the importance of recognizing that remission is not a cure and that public awareness and adequate funding for adolescent and young adult cancer survivorship programming is tantamount to that of cancer research.

This is what it means to be a cancer survivor.

To read more about Zachary's powerful journey, click here for an unbelievably moving essay -- titled The Cost Of Living: No Cure For Cancer -- written by this unbelievably grounded guy.

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